Hope for Batten Cure
in United States at Reverchon Park
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5k Run
Online registration is closed for this category.
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2-Mile Walk
Online registration is closed for this category.
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1k Fun Run
Online registration is closed for this category.
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Virtual Runner
Can't participate, but would like to support our cause? Become a virtual runner - we'll mail you a t-shirt.Online registration is closed for this category.
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Donation Only
For those who cannot attend the race, but wish to make a donation.Online registration is closed for this category.
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Race Details |
Location:
Reverchon Park
3505 Maple Street
Dallas, Texas 75219
Schedule
8:00 AM: Race Day Registration
9:00 AM: 5k Run
9:05 AM: 2 Mile Walk
10:00 AM: 1K Fun Run
Awards
1st Overall, Male and Female
1st Masters, Male and Female
1st, 2nd and 3rd in age category
Customized trophies by khsculpture.com/.
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In-Person Registration and Packet Pick-Up |
Wednesday & Thursday, May 9 & 10 from 10:00 am to 7:00 pm
Run-On
5400 E. Mockingbird Lane, #114
Dallas 75206
No Friday Pick Up
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Beneficiary |
BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION (BDSRA) is a non-profit organization in accordance with Section 501(c)(3) of the code.
Batten disease is a rare degenerative brain disease that affects children. It is always fatal. Children are born normal and reach most developmental goals. When the disorder first manifests itself, the children become blind and suffer different types of seizures which can be hard to control. They begin to suffer cognitive decline, beginning with the loss of short term memory. Many will suffer personality changes that can border on psychotic behavior. Mobility is affected beginning with stumbling and ending with the child being in a wheelchair.
One of the most difficult stages of the disease occurs when the child loses his/her speech. When that is gone, it becomes a guessing game as to the child's needs, pain, etc. This is followed by the loss of the abilities to eat and drink. Eventually they will be fed through a tube inserted through the abdominal wall.
The disease causes death of brain cells, Death for the child happens when the brain can no longer sustain life.
Batten disease was first identified 180 years ago. However, it has only been in the past ten years that progress has been made. Scientists have identified the specific genes for several types of Batten disease and this has led to the development of DNA diagnostics, carrier and prenatal tests. Additionally, there is hope on the horizon for treatment through gene replacement and stem cell transplant therapies. Currently, we are raising money to prepare for clinical trials that could lead to a cure for our children.
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For Additional Event Information |
Contact Nancy Lowden at 972-497-9705 or nslowden@swbell.net.
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