CRMO Awareness Virtual 5K Walk-A-Thon

in Anytime between October 3 and October 10, 2021

  • CRMO Awareness Virtual 5K Walk-A-Thon
    Includes a cool event t-shirt and superhero cape sent directly to your home (guaranteed if registered by September 7; after that date we will do our best to provide)

    » $45.00 international registration (through the day of the event)
    » $35.00 registration (through the day of the event)
    Register for the Virtual Walk-A-Thon

  • Donation To Kaila's Komfort
    Contribute to the cause without registering for the walk.

    » Donate Any Amount
    Make A Donation

* Click here for fee information

Connect with others about this event and see who's going!

Visit Fundraiser Homepages

Learn more about a fundraiser participating in this event, click on one of the names below.

Addie’s Crew
Amira's Heros
CRMO UTAH (Roy Location) (17 members, $600.00)
Direct Donation To Kaila's Komfort (31 members, $2,955.00)
Ellie's Plant Based Power (29 members, $3,360.00)
Kaelin’s Crew (7 members, $330.00)
McKenzi’s Warriors (22 members, $980.00)
Norah's Infinite Fan List (22 members, $1,310.00)
Run for Rowan (15 members, $665.00)
Sam's Fram! (80 members, $4,540.00)
Team Abram (17 members, $1,526.18)
Team Alyssa (5 members, $175.00)
Team Anna (5 members, $175.00)
Team Audrey (11 members, $640.00)
Team Azzie (7 members, $230.00)
Team Brennan (6 members, $180.00)
Team Callie (4 members, $150.00)
Team Cataleya (2 members, $70.00)
Team Emma (1 member, $45.00)
Team Faith- PNW Warriors (20 members, $915.00)
Team Gracie (8 members, $475.00)
Team GRIFFIN (25 members, $1,220.00)
Team Hannah (1 member, $45.00)
Team Kaila - Walking For All Warriors (20 members, $915.00)
Team Kendra - Newfoundland, Canada (2 members, $115.00)
Team Madison (6 members, $205.00)
Team Meghan (28 members, $1,876.00)
Team Molly Sarah and Leora (35 members, $1,530.00)
Team Nico (Pennsylvania) (8 members, $285.00)
Team Norway (1 member, $45.00)
Team Rylee (Kentucky) (10 members, $350.00)
Team Shayna (99 members, $5,940.00)
Team Sherlock P Bones (5 members, $175.00)
Team SuperHero Jase (5 members, $230.00)
Team Willow (5 members, $225.00)
Tori’s Squad (4 members, $140.00)
Tori’s Superstars!
walking for koko
“TEAM ALYEA” ‘Care2FightThe Flare’ (3 members, $80.00)
progress total raised: $32,697.18
goal: $30,000.00

progress: 108.99%

Where will the proceeds from this year's walk go?

This year, the majority of the proceeds of the Walk-A-Thon will be donated to a CRMO specific research project. The Cassat Laboratory at Vanderbilt University Medical Center studies infectious and inflammatory diseases of bone, including CRMO/CNO. Of particular importance to CRMO research, and in collaboration with Dr. Zhao and Dr. Ferguson, they have been studying how bone and immune cells isolated from patients interact to cause inflammation and bone damage. They have also created innovative new approaches to directly visualize molecular changes in bone specimens, with the hope that these tools will ultimately provide both diagnostic and prognostic information for patients suspected of having CRMO. The proposed pilot project will synergistically merge their basic science expertise with outstanding investigators who perform clinical and translational research focused on patients with CRMO. They will leverage a new technique to “see” the genetic changes that are occurring in normal versus inflamed bone using biopsies from patients with CRMO. They hope that this approach will enable their interdisciplinary team to identify specific markers that will help to diagnose CRMO using either blood or bone samples. There is a desperate need for new tests that allow doctors to determine if a patient has CRMO, as opposed to another bone disease like cancer or infection and instead of just diagnosing after excluding everything else. Long term, we expect this pilot project to fuel a large NIH-funded study that will prospectively evaluate how imaging the genetic changes in bone can provide a diagnosis, prognosis, or new treatment option for patients and families suffering from CRMO.

We need to raise a minimum of $20,000 to provide the funding for this pilot project. You can help us by signing up for the Walk-A-Thon or asking friends and family to donate to this important research.

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