CRMO Awareness Virtual 5K Walk-A-Thon

in Anytime between October 9 and October 16, 2022

  • CRMO Awareness 5K Walk-A-Thon
    Includes a cool event t-shirt and matching event CRMO Awareness jelly bracelet sent directly to your home (guaranteed if registered by September 19; after that date we will do our best to provide)

    » $45.00 international registration (through the day of the event)
    » $35.00 registration (through the day of the event)
    Register for the Virtual Walk-A-Thon

  • Donation To Kaila's Komfort
    Contribute to the cause without registering for the walk.

    » Donate Any Amount
    Make A Donation

* Click here for fee information

Connect with others about this event and see who's going!

Visit Fundraiser Homepages

Learn more about a fundraiser participating in this event, click on one of the names below.

Alyssa’s Awesome Avengers (10 members, $350.00)
Cameron’s CRMO
Charlotte’s Zombie Warrior Walk (18 members, $660.00)
CRMOCORNS (9 members, $1,145.00)
CRMOpocolypse Colorado (28 members, $1,070.00)
Direct Donation To Kaila's Komfort (13 members, $1,185.00)
Ellensburg CRMO Mamas (1 member, $85.00)
Ellie's Eastern Chipmunks
Em's Sparkle Squad (16 members, $1,005.01)
Faith's Fungi's (10 members, $415.00)
Fly like an Eagle (4 members, $140.00)
Jersey Strong Warriors (5 members, $290.00)
Kenzie's CRMO Hike
Kz Girl's Journey (6 members, $210.00)
Makayla's CRMO Awareness Walk
Meghan's Chicago Walkers (34 members, $1,755.00)
Noraa’s team (3 members, $110.00)
Northern Utah CRMO Warriors (10 members, $350.00)
Paxton Proud (10 members, $350.00)
Sam’s Fram (62 members, $3,405.00)
Sophia's Seattle squad (7 members, $535.00)
St. George team (1 member, $60.00)
Team Aaliyah (1 member, $35.00)
Team Abram (3 members, $95.00)
Team Addison (1 member, $35.00)
Team Anna (4 members, $190.00)
Team Audrey
Team B
Team Brody (12 members, $720.00)
Team Callie (2 members, $95.00)
Team Cromwell (5 members, $405.00)
Team Gracie (6 members, $300.00)
Team Griffin (18 members, $1,300.00)
Team Hannah
Team Hannah - UK (1 member, $45.00)
Team Hensley (6 members, $340.00)
Team Jackson (6 members, $210.00)
Team Kaila - Walking for All Warriors (22 members, $930.00)
Team Kentucky (6 members, $210.00)
Team Khloe (3 members, $135.00)
Team Madison (4 members, $150.00)
Team Nico (10 members, $350.00)
Team Olivia Grace (3 members, $95.00)
Team Ryan (1 member, $135.00)
Team Seanster (1 member, $5.00)
Team Silje (1 member, $45.00)
Team “Shawn” (7 members, $315.00)
The Rising Phoenix (24 members, $1,635.00)
Walking for Aiden (37 members, $1,540.00)
progress total raised: $22,435.01
goal: $30,000.00

progress: 74.78%

Where will the proceeds from this year's walk go?

Are you wondering what your registration/donation to the CRMO Awareness 5K Walk-A-Thon is supporting this year? This event is our tiny non-profit's largest fundraiser of the year and supports our care package program which allows us to bring comfort, understanding and hope to CRMO Warriors around the world. Additionally, each year we donate a portion of the walk proceeds to a CRMO specific research project. We work with the leading CRMO doctors/researchers to determine which project most needs our support, while ensuring that the results will be open access, meaning they will share the outcome of the project. This year's donation will support the CHOIR registry and will specifically help fund a research coordinator who will extract data from clinical notes and assist other sites in completing data entry for scientific merit, and a statistician to conduct meaningful analysis that will enable the researchers to share the results with the CRMO community. The project is ongoing, and the researchers have multiple questions that they will ask the statisticians to help them answer, specifically:

· What are the usage patterns of second-line treatments and what are the corresponding changes in clinical disease activity and patient reported functions?

· Does the duration of NSAID treatment impact flare rate in children with good response to NSAIDs?

· What are the long-term off-medication remission for those who received only NSAIDs, those who received second-line treatments?

· Continuous safety monitoring and whether we can develop a risk model for TNFi associated psoriasis

The researchers' publication will then be available in the public domain to allow open access by all families and physicians. We are so grateful for the work this international group of researchers are taking part in.

Please consider joining us this year, and help support this important work that benefits all CRMO Warriors worldwide. And thank you from the bottom of our hearts to everyone that has already registered or donated. We truly appreciate our amazing village!

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