CRMO Awareness Virtual 5K Walk-A-Thon - Team Griffin

***TEAM GRIFFIN***
Our sweet boy has a rare disease called Chronic Recurring Multifocal Osteomyelitis (CRMO). He was diagnosed just after his 5th birthday. CRMO is a rare disease that causes inflammation in and around the bone for unknown reasons. CRMO can cause swelling and a lot of pain to the affected areas. Griffin lives with about NINE 'lesions' which are areas of damaged bone. His pain is for the most part under control with daily medication. We flew to Iowa this summer so that Griffin could see the #1 specialist in the world for this disease.

-THERE ARE NO FDA MEDICATIONS APPROVED FOR THIS DISEASE
-EVERYTHING HE TAKES IS EXPERIMENTAL AND LONG-TERM SIDE AFFECTS ARE UNKNOWN.
-THERE IS NO SPECIFIC CURE. YOU KEEP FIGHTING THE DISEASE AND YOU HOPE THAT YOUR BODY GOES INTO REMISSION.

Will you please help us raise funds for CRMO research?

Team Griffin Members

• Kaylyn Tappen - Donation To Kaila's Komfort
• Meghan Sterling - Donation To Kaila's Komfort
• Tracey Peterson - CRMO Awareness 5K Walk-A-Thon
• Traci Green - Donation To Kaila's Komfort
• Sandra White - Donation To Kaila's Komfort
• Brandon Tappen - Donation To Kaila's Komfort
• Marc Tappen - CRMO Awareness 5K Walk-A-Thon
• Michelle Tappen - CRMO Awareness 5K Walk-A-Thon
• Nancy and Alan Tappen - Donation To Kaila's Komfort
• Thuy Lam - Donation To Kaila's Komfort
• Melissa McFarlane - Donation To Kaila's Komfort
• Jeremy White - CRMO Awareness 5K Walk-A-Thon
• Dana Tappen - CRMO Awareness 5K Walk-A-Thon
• Susan Switzer - Donation To Kaila's Komfort
• Wendy Chan - Donation To Kaila's Komfort
• Larecia Shirley - Donation To Kaila's Komfort
• Brianna Zarins - CRMO Awareness 5K Walk-A-Thon

Team Griffin has raised $1,190.00.