CRMO Awareness Virtual 5K Walk-A-Thon - Run for Rowan

Hi everyone!

As some of you know, we recently got a diagnosis for Rowan of CRMO. This stands for Chronic Recurrent Multifocal Osteomyelitis. This a very rare and painful, incurable disease. We’re working with doctors at TCH to develop a pain management plan for him.

After this diagnosis I started researching and studying what I could find on CRMO. Unfortunately, there isn’t much. However I did come across a wonderful non profit, Kailas Komfort.

They organize a 5k walk/run to raise funds for their non profit and also CRMO research. We’ll be running this year to raise money and also raise awareness for our awesome Rowan! If you would like to donate or run with us we’d love to have you support our boy!

You can register for $45 and get a shirt. Just make a donation. Or just show up and run with us to raise awareness for CRMO and show support for our boy.

Connect with others about this event and see who's going!

---

Run for Rowan Members

• Jennifer Sauer - Donation To Kaila's Komfort
• Chuck and Linda Genella - Donation To Kaila's Komfort
• Laura Genella - Donation To Kaila's Komfort
• Montgomery and Lori Carreon - Donation To Kaila's Komfort
• Bubba Stowers - Donation To Kaila's Komfort
• Amber Stowers - Donation To Kaila's Komfort
• Amanda Ramirez - Donation To Kaila's Komfort
• Will Weston - CRMO Awareness Virtual 5K Walk-A-Thon
• Pris Weston - CRMO Awareness Virtual 5K Walk-A-Thon
• Slade Mitchell - CRMO Awareness Virtual 5K Walk-A-Thon
• Tiffany Mitchell - CRMO Awareness Virtual 5K Walk-A-Thon
• Lance Andrews - CRMO Awareness Virtual 5K Walk-A-Thon
• Yasoara Lopez - Donation To Kaila's Komfort
• Nikkie Frankum - CRMO Awareness Virtual 5K Walk-A-Thon
• Dale Frankum - CRMO Awareness Virtual 5K Walk-A-Thon
• Jenny OQuinn - CRMO Awareness Virtual 5K Walk-A-Thon
• Dana Cox - CRMO Awareness Virtual 5K Walk-A-Thon
• Emily Sweeten - CRMO Awareness Virtual 5K Walk-A-Thon
• Laura Zamora - CRMO Awareness Virtual 5K Walk-A-Thon
• Jason Carlile - Donation To Kaila's Komfort
• William Weston - CRMO Awareness Virtual 5K Walk-A-Thon
• Courtney Koudela - CRMO Awareness Virtual 5K Walk-A-Thon
• Marion Matthews - CRMO Awareness Virtual 5K Walk-A-Thon
• Jessica Weston - CRMO Awareness Virtual 5K Walk-A-Thon
• Josh Cohen - CRMO Awareness Virtual 5K Walk-A-Thon
• Chelsea Cohen - CRMO Awareness Virtual 5K Walk-A-Thon

Run for Rowan has raised $1,210.00.