CRMO Awareness Virtual Walk-A-Thon/5K - Willow's 5K Walkers

Saturday, October 17, 2020 in United States

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It's been a painful, frustrating, scary and traumatic couple of years since Willow started developing a range of symptoms that would baffle heath professionals for the better part of two years.

From being told she's faking it, to three surgeries, two weeks in hospital, a month of IV meds and daily nurse visits, 11 weeks straight on crutches or in a wheelchair (plus the rest), fearing the worst, countless scans, needles and tears, Willow has been through the ringer, to say the least, and is the toughest kid we know.

Since being (finally) diagnosed with CRMO (a rare 1:1,000,000 inflammatory bone disease) in June, we have been fortunate enough to come across an amazing community from across the globe, dedicated to sharing information and offering support to those who suddenly find themselves part of "the club" with very little info to go on.

Each year, across the world, there is a 5km walk to raise awareness for this disease, and raise funds for much needed further research. This year looks a little different thanks to COVID, but we will be "joining" other families from across the world, by walking 5K on our own as a family as part of the first ever virtual event in the second week of October.

We are fortunate Willow is doing really well at the moment, and able to join us. We would appreciate your support, either moral or financial - we value each equally, and thank you for your support.

Love from The Burrows Family. xxxxx.

Connect with others about this event and see who's going!

Willow's 5K Walkers Members

  • Willow Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
  • Indie Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
  • Jasper Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
  • David Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
  • Catherine Burrows - CRMO Awareness Virtual 5K Walk-A-Thon

Willow's 5K Walkers has raised $225.00.

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