CRMO Awareness Virtual Walk-A-Thon/5K - Team Willow

It's been a painful, frustrating, scary and traumatic couple of years since Willow started developing a range of symptoms that would confound heath professionals for the better part that time.

From being told she's faking it, to three surgeries, two weeks plus in hospital, a month of IV meds and daily nurse visits, 11 weeks straight on crutches or in a wheelchair (plus the rest), warned to brace for the worst, countless scans, needles and tears, Willow has been through an awful ordeal, and is the toughest kid we know.

Since being diagnosed with CRMO (a rare 1:1,000,000 inflammatory bone disease) in June, we have been fortunate enough to come across an amazing community from across the globe, dedicated to sharing information and offering support to those who suddenly find themselves part of this club, with very little info to go on.

Each year, there is a 5km walk to raise awareness for this disease, and raise funds for much needed research and ongoing support of CRMO families. This year looks a little different thanks to COVID, but we will be "joining" others from across the world, by walking 5K as a family as part of the first ever virtual event in October.

We would appreciate your support, either moral or financial - we value each equally, and thank you for your care.

Love from The Burrows Family. xxxxx.

Team Willow Members

• Stuart Cran - Donation To Kaila's Komfort
• Natasha Bolmat - Donation To Kaila's Komfort
• Jo Brady - Donation To Kaila's Komfort
• Anonymous - Donation To Kaila's Komfort
• Suzanne James - Donation To Kaila's Komfort
• Natalie Shalit - CRMO Awareness Virtual 5K Walk-A-Thon
• Dave Axup - Donation To Kaila's Komfort
• Stephen Natoli - CRMO Awareness Virtual 5K Walk-A-Thon
• Anna Natoli - CRMO Awareness Virtual 5K Walk-A-Thon
• Liz Wheeldon - CRMO Awareness Virtual 5K Walk-A-Thon
• Rebecca Freeman/ Cochrane - Donation To Kaila's Komfort
• Melena Birtles - Donation To Kaila's Komfort
• Anonymous - CRMO Awareness Virtual 5K Walk-A-Thon
• Emma Norman - Donation To Kaila's Komfort
• Anna Mcfarland - CRMO Awareness Virtual 5K Walk-A-Thon
• Richard Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
• Angela Martinelli - Donation To Kaila's Komfort
• Alan Burrows - Donation To Kaila's Komfort
• Sarah Barry - CRMO Awareness Virtual 5K Walk-A-Thon
• Alla Barden - CRMO Awareness Virtual 5K Walk-A-Thon
• Niki Calastas - Donation To Kaila's Komfort
• Bonnie Brown - CRMO Awareness Virtual 5K Walk-A-Thon
• Jodi Jacob - Donation To Kaila's Komfort
• Kate Cooper - Donation To Kaila's Komfort
• Maija Gwynn - Donation To Kaila's Komfort
• Ainsley Sinicco - Donation To Kaila's Komfort
• Suzi Yap - Donation To Kaila's Komfort
• Andrew Shale - Donation To Kaila's Komfort
• Rebecca Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
• Dan Emry - CRMO Awareness Virtual 5K Walk-A-Thon
• Lagia Papageorgiou - Donation To Kaila's Komfort
• Eva Karunanayake - Donation To Kaila's Komfort
• Renata Rees - Donation To Kaila's Komfort
• Sumal Karunanayake - Donation To Kaila's Komfort
• Bec & Geoff Campbell-Burns - Donation To Kaila's Komfort
• Eliza Godkin - CRMO Awareness Virtual 5K Walk-A-Thon
• Family Feeney - Donation To Kaila's Komfort
• Willow Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
• Indie Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
• Jasper Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
• David Burrows - CRMO Awareness Virtual 5K Walk-A-Thon
• Catherine Burrows - CRMO Awareness Virtual 5K Walk-A-Thon

Team Willow has raised $2,442.00.