Hemophilia of Iowa, Inc.
4th and 5th Edition Clot Trot - Team Tytons

Welcome to the Team Tytons homepage.

[b]I always take life with a grain of salt ...plus a slice of lemon ...and a shot of tequila.[/b]

Yes, this year has been pretty sour at times; but also very refreshing at others. The Rezac household has had its ups and downs this year, like many of us. Jack, Ty and Mac have all grown into little men and Lucy is our precious new little lady. We live day by day and year by year, thankful for every moment.

As many of you already know; July 21st, 2011 was one of the happiest days of our life. We delivered a happy healthy baby boy, named Ty. The next day was perhaps the scariest day of our lives. When Ty was one day old he suddenly began to bleed uncontrollably. After extensive testing and receiving plasma the doctors at our local hospital were able to stop the bleeding, but were still perplexed as to the reason for his unexpected severe bleeding. We were then referred to University of Iowa Stead Family Children’s Hospital, Hematology & Oncology center. That is where we were given the diagnosis of Severe Hemophilia, factor 8 deficiency. The doctors, nurses and care team then went through the daunting task of explaining the condition and its limitations. They taught us about the different medications Ty would now have to use intravenously for his entire life. They instructed us how and what we would have to do differently to keep our baby safe and healthy. They told us he could live a “normal” life if we were careful, gave him his expensive medications and regularly monitor and treat his condition.

Let me tell you, Ty was not a child ok with just being “normal”. Ty pushes the limits of his condition daily, and often pushes past those limits and suffers because of it. Telling Ty he can’t do something because he has bleeding condition is not an option, nor should it be. Ty lives life to the fullest and doesn’t use his chronic health condition as an excuse. Instead he sees himself as a vessel to create change in thinking and status quo.

When Ty was just a toddler he embarked on a journey to change what doctors knew of hemophilia and its treatments of small children. Ty enrolled in a clinical trial, with a new form of medication for treating his bleeding disorder. Ty became a leader in change. Ty became a vessel to create a new way for children to possibly suffer less and have better treatment options. With the help of Dr. Janice Staber and Research Coordinator Tracy Peters, Ty broke down barriers and embarked on a journey to be a part of the solution. Rather than wait for the latest greatest thing, he decided to help create and be a part of it. Ty has been on this long clinical research trial journey for 3 years now. He is still subjecting himself to countless needle sticks, extensive blood testing, 2 hour drives back and forth for regular checkups and many other inconveniences just in hopes that he can make a difference in the knowledge and treatment of bleeding disorders. Ty prays, hopes and dreams of the day, when Hemophilia is no more and he can just be “normal”.

[i]The birth of Ty may have been one of the happiest days of our life but finding the cure for Hemophilia will be the happiest day of Ty’s life![/i]

[b]University of Iowa’s Hemophilia Treatment Center[/b] (HTC) is leading the way to change. With continuing efforts in research and innovating treatment options for children like Ty, with chronic health conditions. Be part of the solution, see how you can help change the status quo and make life better for children like Ty. I continually pray and dream of a cure for my child's chronic health condition and University of Iowa’s HTC along with the help of[b] Hemophilia of Iowa[/b] is working to make my dreams come true.

We are relentless to get the best care for our son. We get endless support and encouragement from our nurses and staff at our Hemophilia Treatment Center (HTC) in Iowa City and other families and suffers’ in the bleeding disorder community that we have met through Hemophilia of Iowa (HOI). Through these people we have gained considerable knowledge and have been enabled with the power to confront and demand more for our son.

HOI has embraced our family and we reach out to yours to support this trustworthy organization and this personally influential cause. This year I am helping HOI organize[b] 5k & 10k walk /runs in West Des Moines at Raccoon River Park Sunday May 7th [/b]and Hiawatha at Guthridge Park Saturday August 5th. If you would feel compelled to run, walk or donate to our team we would love to have you! Or do you have a business that could contribute in services or funds towards the event? Anything and everything would be appreciated and helpful to support this great group.

[b]Contact HOI to see how you can help:
[url=http://www.HemophiliaofIowa.org]www.HemophiliaofIowa.org[/url][/b]

[i]Sincerely,
Neil, Joni, Jack, Ty, Mac & Lucy[/i]

Contact The Rezac’s at:
rezac.joni@gmail.com or rezac.neil@gmail.com

[b]*When life gives you lemons, take a shot.*[/b][i][/i][i][/i]

Connect with others about this event and see who's going!

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Contributors on Behalf of Team Tytons

1. Mac Rezac, Ty Rezac, Jack Rezac, Neil Rezac, Joni Rezac - 4th Edition Clot Trot - West Des Moines, IA on Sunday, May 7, 2017

Team Tytons has raised $0.00.
Team Tytons has a goal of raising $500.00.

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