Hope for Batten Cure
in United States at Bachman Lake
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5k Run
Online registration is closed for this category.
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2-Mile Walk
Online registration is closed for this category.
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1k Fun Run
Online registration is closed for this category.
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Donation Only
For those who cannot attend the race, but wish to make a donation.Online registration is closed for this category.
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Race Details |
Location:
Bachman Lake Trail
3500 West NW Hwy
Dallas, TX 75220
Schedule
8:00 AM: Race Day Registration
9:00 AM: 5k Run (USATF Certified)
9:05 AM: 2 Mile Walk
10:00 AM: 1K Fun Run
The 5K Race will be run on the mostly flat trail which circles Bachman Lake.
Awards
1st Overall, Male and Female
1st Masters, Male and Female
1st, 2nd and 3rd in age category
Customized trophies by khsculpture.com/.
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In-Person Registration and Packet Pick-Up |
Wednesday & Thursday, May 11 & 12 from 10:00 am to 7:00 pm
Run-On
5400 E. Mockingbird Lane, #114
Dallas 75206
Friday, May 13, 11:00 am to 6:00 pm
Lake Highlands YMCA
8920 Stults Road
Dallas 75243
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Beneficiary |
BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION (BDSRA) is a non-profit organization in accordance with Section 501(c)(3) of the code.
Batten disease is a rare degenerative brain disease that affects children. It is always fatal. Children are born normal and reach most developmental goals. When the disorder first manifests itself, the children become blind and suffer different types of seizures which can be hard to control. They begin to suffer cognitive decline, beginning with the loss of short term memory. Many will suffer personality changes that can border on psychotic behavior. Mobility is affected beginning with stumbling and ending with the child being in a wheelchair.
One of the most difficult stages of the disease occurs when the child loses his/her speech. When that is gone, it becomes a guessing game as to the child's needs, pain, etc. This is followed by the loss of the abilities to eat and drink. Eventually they will be fed through a tube inserted through the abdominal wall.
The disease causes death of brain cells, Death for the child happens when the brain can no longer sustain life.
Batten disease was first identified 180 years ago. However, it has only been in the past ten years that progress has been made. Scientists have identified the specific genes for several types of Batten disease and this has led to the development of DNA diagnostics, carrier and prenatal tests. Additionally, there is hope on the horizon for treatment through gene replacement and stem cell transplant therapies. Currently, we are raising money to prepare for clinical trials that could lead to a cure for our children.
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For Additional Event Information |
Contact Nancy Lowden at 972-497-9705 or nslowden@swbell.net.
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